Hello everyone.
Many of you know the beautiful friend we made through Amelia's Project that lives in New Zealand.
You may remember that she flew over to meet us.......... (you read that correctly) after reading about our family in a magazine.
You may remember me telling you that we were worried that she may be some psycho axe murderer and her family were worried we may be just a "scam".
Meeting the genuinely beautiful Holly Detman could not have been any different.
She flew over to give Amelia a big hug and a photo album she had handcrafted herself.
No ulterior motive.
Next she flew over to attend the BrAshA-T gala night to help raise funds to find a cure for Ataxia Telangiectasia.
The last time we saw her she stayed with us.
She wanted to attend the final Amelia's Project Gala night.
She has now become one of my closest friends and Scott, Amelia, Tom and I consider her as part of our family.
What people do not know is that Holly and Marcus have been desperately wanting a child since long before we met them.
Today they announced they are pregnant.
One little tadpole swam with all it's might to stay and grow in Holly's body.
We are beside ourselves excited for them in this house.
This is a couple that truly deserves the gift of a child.
It is going to be the most well loved, well cared for little miracle.
Congratulations Holly and Marcus.
xxx
Saturday, 23 August 2014
Thursday, 21 August 2014
Bored
Hello friends,
I am bored and feeling yuk with a full on head cold, so I thought I would bore all of you too.
These a "quotes" that have made me laugh, or just really think recently.
I may actually do a post about Miss Amelia one day !!!
Enjoy :)
Do not ask your children to strive for extraordinary lives.
Such striving may seem admirable. but it is a way of foolishness.
Help them instead to find the wonder and the marvel of an ordinary life.
Show them the joy of tasting tomatos, apples and pears.
Show them how to cry when pets and people die.
Show them the infinite pleasure in the touch of a hand.
And make the ordinary come alive for them.
The extraordinary will take care of itself.
xxx
I am bored and feeling yuk with a full on head cold, so I thought I would bore all of you too.
These a "quotes" that have made me laugh, or just really think recently.
I may actually do a post about Miss Amelia one day !!!
Enjoy :)
Do not ask your children to strive for extraordinary lives.
Such striving may seem admirable. but it is a way of foolishness.
Help them instead to find the wonder and the marvel of an ordinary life.
Show them the joy of tasting tomatos, apples and pears.
Show them how to cry when pets and people die.
Show them the infinite pleasure in the touch of a hand.
And make the ordinary come alive for them.
The extraordinary will take care of itself.
xxx
Wednesday, 20 August 2014
Thank you
Hello everyone.
Thank you for your response to my previous blog.
I should not be surprised how many are silently dealing with depression.
I should add that another "double whammy" is the changes in society and expectations on individuals.
Pressures from work, "keeping up with the Jones's", parenting skills, how you SHOULD be, how you SHOULDN'T be ........ etc etc etc etc can be very overwhelming.
Writing that piece was very draining and has made me sit back and think.
I need to continue writing the book again.
I came across this on the Internet and think it is very powerful from so many different angles.
The words, not just because of WHO said them, should be a guide in how to live life.
It only goes for 1 minute.
http://www.sunnyskyz.com/happy-videos/1033/The-Most-Beautiful-Tribute-To-Robin-Williams-And-It-s-Just-A-Minute-Long#M7OLky9AJQ0rvyX3.01
xxx
Thank you for your response to my previous blog.
I should not be surprised how many are silently dealing with depression.
I should add that another "double whammy" is the changes in society and expectations on individuals.
Pressures from work, "keeping up with the Jones's", parenting skills, how you SHOULD be, how you SHOULDN'T be ........ etc etc etc etc can be very overwhelming.
Writing that piece was very draining and has made me sit back and think.
I need to continue writing the book again.
I came across this on the Internet and think it is very powerful from so many different angles.
The words, not just because of WHO said them, should be a guide in how to live life.
It only goes for 1 minute.
http://www.sunnyskyz.com/happy-videos/1033/The-Most-Beautiful-Tribute-To-Robin-Williams-And-It-s-Just-A-Minute-Long#M7OLky9AJQ0rvyX3.01
xxx
Monday, 18 August 2014
Depression
Hello dear friends.
I am going to attempt to write a piece on something very close to my heart.
It comes from many experiences from those around me, both past and present.
It comes from my own experiences.
I have battled with the decision on whether to write about this or not, for a few days now.
It will not be correct to many, but it is to me.
The death of the very famous Robin Williams has rocked many of us.
He was like the "uncle" you wished you had.
He was kind, a genius in comedy and someone that appeared to love everyone.
He made everyone laugh with his humour.
It is like we all knew him.
He is the LAST person to have depression......surely?
He had all the money in the world, a beautiful family and a successful career that any actor would dream of.
Surely he could fix his depression with the rest of the world at his feet????
These past few days, I have read many things that made me question whether people really understand depression.
I am talking about REAL depression.
The one that is with you for life and not brought on by hardship, a difficult situation, a period of time that will improve.
I want to talk about the one that means that your brain is incapable of releasing the happy hormones on a daily basis.
The depression where the chemical imbalance in your brain means daily life is a struggle.
For some people it can be for short periods at a time....others longer periods.
As with everything in life, each individual, with depression, is different.
Some people seek therapy and this can sometimes help.
Some learn to create their own coping mechanisms.
Some just keep putting one foot in front of the other to try and continue the daily grind.
A lot of people with depression always have a smile and function at what is considered an acceptable level.
You may never know that your best friend suffers from it.
What is incredibly interesting is that most "outsiders" would never know what these people are dealing with.
It is who they are and many have learnt to "mask" a difficult period.
The difference of long term, or life long depression compared to a shorter term depression is these people know it will come back again.
When and where is impossible to determine.
You just know it is there.
There is also the "situations" that can cause depression like anyone else.
A double whammy so to speak.
For outsiders to say "move on", "get over it" or "cheer up" is not helpful.
It is the brain controlling it through the release of hormones.
Medication can help but it is also a matter of finding the right one and the right balance.
The best quote I read this week was from another famous actor... Ricky Gervais.
Telling people with depression to "just snap out of it" is about as useful as telling people with cancer to "just stop having cancer".
Society and individual people in general are confused about how to handle people in a difficult period.
I cannot answer how myself.....
except to say be there.
message even if they do not repond.
call even if they do not answer.
do not pressure, just say you are there and you care.
be non judgemental and show them that you are.
understand that they are still a person who is worthy of your time.
show them that.
Depression is quite often hidden from others due to the silent negative stigma towards it.
People look at you differently.
People treat you differently.
People are wary.
Employers are hesitant to treat you equally.
Friends think you may not be as much fun.
To search for the positives in every difficult situation is paramount.
"oh. I am tired....... Maybe my body needs to rest so I can function better in the future".
"Tomorrow is a new day".
"We will stay home today. It will give me some time with family or catch up on movies, TV shows or sleep".
There is a positive affirmation in everything.
Lots turn to alcohol and drugs.
The endorphins they bring, even though short, are a welcome relief.
A feeling of happiness, being numb and in a different "head space".
But that only exasperates the depression.
It adds to the feeling of sadness when you come down off them.
But it can be hard to get to the point of realising this.
I can only guess what it must be like when you get to the stage where suicide is the only answer.
Some call it "selfish" or being a "coward".
I can only imagine it is when someone is at the bottom of a deep, dark well and can see no way out.
They have tried so many options.
Had so many negative interactions with those around them and possibly see themselves as a burden.
The feelings of pain within themselves for not only themselves, but those around them must be overwhelming.
People live with depression everyday.
It is not a contagious disease.
I have had many people get cross with me or criticise the different facets of my own depression.
A lot of us "joke" about the things that actually personally upset us.
Subjects we just cannot move on from.
Sometimes you go through a positive phase of thinking and then BAM the negative kicks in.
Depression can make you say and think things that are not sensible.
My weight gain would be my own personal example.
I hate my body.
That is just something I have grabbed hold of and cannot let go of.
I do not know all there is to know about depression and some may disagree with what I have written.
I am just grateful that we live in a house where people know they are welcome to just come and talk.
We are lucky to talk about depression with those around us suffering from it.
It is not all negative talk. A lot of it is humour.
You have to laugh about it sometimes!
I am accepting of my own depression and having those close to me just being there when I am sailing through a difficult patch.
Now to plan my 40th Birthday.
It will be at a massive trampoline warehouse and everyone has to wear superhero constumes.
It will be hired out just for me and those I love and care for.
That is sensible thinking.....right ??!!
xxx
I am going to attempt to write a piece on something very close to my heart.
It comes from many experiences from those around me, both past and present.
It comes from my own experiences.
I have battled with the decision on whether to write about this or not, for a few days now.
It will not be correct to many, but it is to me.
The death of the very famous Robin Williams has rocked many of us.
He was like the "uncle" you wished you had.
He was kind, a genius in comedy and someone that appeared to love everyone.
He made everyone laugh with his humour.
It is like we all knew him.
He is the LAST person to have depression......surely?
He had all the money in the world, a beautiful family and a successful career that any actor would dream of.
Surely he could fix his depression with the rest of the world at his feet????
These past few days, I have read many things that made me question whether people really understand depression.
I am talking about REAL depression.
The one that is with you for life and not brought on by hardship, a difficult situation, a period of time that will improve.
I want to talk about the one that means that your brain is incapable of releasing the happy hormones on a daily basis.
The depression where the chemical imbalance in your brain means daily life is a struggle.
For some people it can be for short periods at a time....others longer periods.
As with everything in life, each individual, with depression, is different.
Some people seek therapy and this can sometimes help.
Some learn to create their own coping mechanisms.
Some just keep putting one foot in front of the other to try and continue the daily grind.
A lot of people with depression always have a smile and function at what is considered an acceptable level.
You may never know that your best friend suffers from it.
What is incredibly interesting is that most "outsiders" would never know what these people are dealing with.
It is who they are and many have learnt to "mask" a difficult period.
The difference of long term, or life long depression compared to a shorter term depression is these people know it will come back again.
When and where is impossible to determine.
You just know it is there.
There is also the "situations" that can cause depression like anyone else.
A double whammy so to speak.
For outsiders to say "move on", "get over it" or "cheer up" is not helpful.
It is the brain controlling it through the release of hormones.
Medication can help but it is also a matter of finding the right one and the right balance.
The best quote I read this week was from another famous actor... Ricky Gervais.
Telling people with depression to "just snap out of it" is about as useful as telling people with cancer to "just stop having cancer".
Society and individual people in general are confused about how to handle people in a difficult period.
I cannot answer how myself.....
except to say be there.
message even if they do not repond.
call even if they do not answer.
do not pressure, just say you are there and you care.
be non judgemental and show them that you are.
understand that they are still a person who is worthy of your time.
show them that.
Depression is quite often hidden from others due to the silent negative stigma towards it.
People look at you differently.
People treat you differently.
People are wary.
Employers are hesitant to treat you equally.
Friends think you may not be as much fun.
To search for the positives in every difficult situation is paramount.
"oh. I am tired....... Maybe my body needs to rest so I can function better in the future".
"Tomorrow is a new day".
"We will stay home today. It will give me some time with family or catch up on movies, TV shows or sleep".
There is a positive affirmation in everything.
Lots turn to alcohol and drugs.
The endorphins they bring, even though short, are a welcome relief.
A feeling of happiness, being numb and in a different "head space".
But that only exasperates the depression.
It adds to the feeling of sadness when you come down off them.
But it can be hard to get to the point of realising this.
I can only guess what it must be like when you get to the stage where suicide is the only answer.
Some call it "selfish" or being a "coward".
I can only imagine it is when someone is at the bottom of a deep, dark well and can see no way out.
They have tried so many options.
Had so many negative interactions with those around them and possibly see themselves as a burden.
The feelings of pain within themselves for not only themselves, but those around them must be overwhelming.
People live with depression everyday.
It is not a contagious disease.
I have had many people get cross with me or criticise the different facets of my own depression.
A lot of us "joke" about the things that actually personally upset us.
Subjects we just cannot move on from.
Sometimes you go through a positive phase of thinking and then BAM the negative kicks in.
Depression can make you say and think things that are not sensible.
My weight gain would be my own personal example.
I hate my body.
That is just something I have grabbed hold of and cannot let go of.
I do not know all there is to know about depression and some may disagree with what I have written.
I am just grateful that we live in a house where people know they are welcome to just come and talk.
We are lucky to talk about depression with those around us suffering from it.
It is not all negative talk. A lot of it is humour.
You have to laugh about it sometimes!
I am accepting of my own depression and having those close to me just being there when I am sailing through a difficult patch.
Now to plan my 40th Birthday.
It will be at a massive trampoline warehouse and everyone has to wear superhero constumes.
It will be hired out just for me and those I love and care for.
That is sensible thinking.....right ??!!
xxx
Wednesday, 30 July 2014
Independence, aliens and bums
Hello Friends.
A conversation a few months ago between Amelia and myself....
"I want to go on a camp" said Amelia.
"Ok. But what are you thinking because your school does not do it for a few years" I answered.
"Some of my friends go. They go on day trips during school holidays too" she says.
" I will look into it" I said.
At the time I was thinking " absolutely no way", "this will NOT be happening" and "treat this delicately with Amelia".
My own dad came around and after being told the details from Amelia stated, "You won't be going to that sweetie".
(he knows what we are like!)
WHY?
Whenever you have a child with a disability all the support networks speak about is "respite".
Respite, respite, respite.
We do not need respite.
Scott and I do not need strangers to look after our child while we have "timeout" or time with Tom.
Scott and I cope beautifully giving each other "timeout".
We have my dad. That is enough "respite".
There is an organisation that offers quality time for disabled children....
It is not just respite for the parents.
Amelia attended her first camp last weekend with this organisation.
It was not our decision.
It was hers.
After attending 2 day trips last school holidays and assessing whether it was "suitable", Amelia pushed and pushed to go on a camp.
She is "growing up".
After much thought, I realised that she needed time away from us.
She needed time away like other children her age.
She needed to gloat and talk about her "adventure".
My concern is and has always been that "no one can care for her like we do".
Amelia cannot do anything for herself.
She has many fears and worries.
WILL these people look after these attributes of her personality?
Will they shower and toilet her appropriately?
Will they make sure she sleeps soundly?
Amelia is OUR child and we will look after her appropriately.
Will they ?
Amelia went and loved it.
There was one complaint about "sleep time".
It is something we will be following up.
It is something we will be ensuring before she goes on any more camps.
Amelia wants to attend more.
That has to be a positive result........surely.
She had a make-up beauty party, made cookies and went to an animal sanctuary.
Amelia spent time away from us and our house.
She connected with the "carers".
It has been a huge learning curve for all of us.
_____________________________________
Tom's school report came home recently.
He is "above average" in 80% of his subject areas.
In most areas he is 6-12 months in front with his learning.
THAT IS HUGE.
Tom is also having nightmares.
At approximately 1am he wakes up and thinks that "aliens" are coming to get him.
It is very upsetting, but also very disrupting to the household sleep routine.
We are all very tired.
Scott suggested going on the Internet and finding how to "power" one of his teddies to look after him.
"Yeah. Like that is going to work!" he responded.
I laughed at Scott thinking Tom would believe that but also laughed at the irony of that fact that "aliens" are coming to get him.
______________________________________
Finally the next interesting news in our household..
I have to endure a colonoscopy next week.
In lamens terms that is "a camera up your bum".
I have begun bleeding from an area where the only substances should be brown
(or blue if you have eaten cake with blue icing - take that from experience!).
After an investigation (no description necessary) it has been decided further investigation is needed.
Most people would not be concerned BUT we are talking about US.
The people who have EVERYTHING happen to them.
Some of you are following my beautiful friend and her battle after bleeding from the bowel.
Why would WE be any different?
We have great luck in this house......NOT.
Will wait until next week
BUT
There is that small (MASSIVE) worry............
__________________________________
Amelia is "freaked out" by my procedure next week.
I decided to try and alleviate the worry by getting her to imagine something.
You MAY find it funny.....
Imagine the people that are doing the procedure next week.
Imagine saying in Kindergarten.....
"WHEN I GROW UP" ........
"I am going to put a camera up peoples bums and look at their poo".
Enjoy your dinner everyone.
xxx
A conversation a few months ago between Amelia and myself....
"I want to go on a camp" said Amelia.
"Ok. But what are you thinking because your school does not do it for a few years" I answered.
"Some of my friends go. They go on day trips during school holidays too" she says.
" I will look into it" I said.
At the time I was thinking " absolutely no way", "this will NOT be happening" and "treat this delicately with Amelia".
My own dad came around and after being told the details from Amelia stated, "You won't be going to that sweetie".
(he knows what we are like!)
WHY?
Whenever you have a child with a disability all the support networks speak about is "respite".
Respite, respite, respite.
We do not need respite.
Scott and I do not need strangers to look after our child while we have "timeout" or time with Tom.
Scott and I cope beautifully giving each other "timeout".
We have my dad. That is enough "respite".
There is an organisation that offers quality time for disabled children....
It is not just respite for the parents.
Amelia attended her first camp last weekend with this organisation.
It was not our decision.
It was hers.
After attending 2 day trips last school holidays and assessing whether it was "suitable", Amelia pushed and pushed to go on a camp.
She is "growing up".
After much thought, I realised that she needed time away from us.
She needed time away like other children her age.
She needed to gloat and talk about her "adventure".
My concern is and has always been that "no one can care for her like we do".
Amelia cannot do anything for herself.
She has many fears and worries.
WILL these people look after these attributes of her personality?
Will they shower and toilet her appropriately?
Will they make sure she sleeps soundly?
Amelia is OUR child and we will look after her appropriately.
Will they ?
Amelia went and loved it.
There was one complaint about "sleep time".
It is something we will be following up.
It is something we will be ensuring before she goes on any more camps.
Amelia wants to attend more.
That has to be a positive result........surely.
She had a make-up beauty party, made cookies and went to an animal sanctuary.
Amelia spent time away from us and our house.
She connected with the "carers".
It has been a huge learning curve for all of us.
_____________________________________
Tom's school report came home recently.
He is "above average" in 80% of his subject areas.
In most areas he is 6-12 months in front with his learning.
THAT IS HUGE.
Tom is also having nightmares.
At approximately 1am he wakes up and thinks that "aliens" are coming to get him.
It is very upsetting, but also very disrupting to the household sleep routine.
We are all very tired.
Scott suggested going on the Internet and finding how to "power" one of his teddies to look after him.
"Yeah. Like that is going to work!" he responded.
I laughed at Scott thinking Tom would believe that but also laughed at the irony of that fact that "aliens" are coming to get him.
______________________________________
Finally the next interesting news in our household..
I have to endure a colonoscopy next week.
In lamens terms that is "a camera up your bum".
I have begun bleeding from an area where the only substances should be brown
(or blue if you have eaten cake with blue icing - take that from experience!).
After an investigation (no description necessary) it has been decided further investigation is needed.
Most people would not be concerned BUT we are talking about US.
The people who have EVERYTHING happen to them.
Some of you are following my beautiful friend and her battle after bleeding from the bowel.
Why would WE be any different?
We have great luck in this house......NOT.
Will wait until next week
BUT
There is that small (MASSIVE) worry............
__________________________________
Amelia is "freaked out" by my procedure next week.
I decided to try and alleviate the worry by getting her to imagine something.
You MAY find it funny.....
Imagine the people that are doing the procedure next week.
Imagine saying in Kindergarten.....
"WHEN I GROW UP" ........
"I am going to put a camera up peoples bums and look at their poo".
Enjoy your dinner everyone.
xxx
Wednesday, 23 July 2014
Searching for Positives
Hello Friends.
Tonight I have been reminded about the fact that a positive can be found in EVERY situation.
The recent disaster of the MH17 plane that was shot done was a shock to us all.
The details of passengers and the wide range of ages, nationalities and humans living "their life".
One story that has played heavily in Australia is about 3 children and their grandfather.
He was returning with the 3 children to Perth, Australia, aged 12, 10 and 8 from Europe, while their parents had a few days alone.
Those children and the grandfather are now dead.
The parents released a "statement" today that told all what we must be feeling for them already.
It is impossible to imagine.
It is incomprehensible.
I was very open at the beginning of this blog........while we were waiting to see whether Tom had Ataxia Telangiectasia.
I said "If he has it too then I will create an amazing life for both and nurse them to my utmost....until the end. Then catch you later".
Tom does not have A-T.
I still dread the way I will be after we say goodbye to Amelia.
Tom will be my lifeline.
BUT we have time.
We know there is an END.
We can treat life differently and appreciate each day in a new light.
We can create and do with "this" as our motive and understanding.
We can have "no regrets at the end".
That is my positive.
We have time.
These parents had no warning or time to ..............
I don't know.....prepare maybe.
But they have lost all their children and a treasured father, father-in-law and grandfather.
They are just.....
Gone.
Please read this link and appreciate what you have...
xxxhttp://www.mamamia.com.au/news/mh17-maslin-family-statement/
xxx
Tonight I have been reminded about the fact that a positive can be found in EVERY situation.
The recent disaster of the MH17 plane that was shot done was a shock to us all.
The details of passengers and the wide range of ages, nationalities and humans living "their life".
One story that has played heavily in Australia is about 3 children and their grandfather.
He was returning with the 3 children to Perth, Australia, aged 12, 10 and 8 from Europe, while their parents had a few days alone.
Those children and the grandfather are now dead.
The parents released a "statement" today that told all what we must be feeling for them already.
It is impossible to imagine.
It is incomprehensible.
I was very open at the beginning of this blog........while we were waiting to see whether Tom had Ataxia Telangiectasia.
I said "If he has it too then I will create an amazing life for both and nurse them to my utmost....until the end. Then catch you later".
Tom does not have A-T.
I still dread the way I will be after we say goodbye to Amelia.
Tom will be my lifeline.
BUT we have time.
We know there is an END.
We can treat life differently and appreciate each day in a new light.
We can create and do with "this" as our motive and understanding.
We can have "no regrets at the end".
That is my positive.
We have time.
These parents had no warning or time to ..............
I don't know.....prepare maybe.
But they have lost all their children and a treasured father, father-in-law and grandfather.
They are just.....
Gone.
Please read this link and appreciate what you have...
xxxhttp://www.mamamia.com.au/news/mh17-maslin-family-statement/
xxx
Wednesday, 16 July 2014
Hard............. (not about penis's)
Hi Everyone.
A few discussions tonight, so if you can "keep up" congratulations.
This morning I asked Scott to have a "sleep in".
I could see that the wear and tear of school holidays AND children being home sick at the start of term 3 was taking a toll on him.
Amelia and Tom returned to school today.
Before anyone berates Scott, lets look at "our morning"...........
Wake both kids up (they are getting older and no longer wake up ultra early).
Physically get Amelia out of bed and take her to the toilet.
Emtionally support Amelia as she prepares herself for the day...
"When do I leave?"
"When do I get Home?"
"What happens today at school?".
Then we need to vomit.
Yes that is the NEW thing.
This morning as she was vomiting, (after not once over school holidays) , she finishes and says "Oh good. I will be ok today now".
Interesting.
Anxiety?
Yes. I think so.
Tom?
Needs to wake up and do a "finger prick" to check his blood glocose levels.
"My tummy hurts. I need to stay home today".
Anxiety? Yes.
He then needs to have a measured insulin dose....based on his insulin levels.
Arguments ensue....
"NO, not now"...
"In a minute."
(we have to leave for school in 10 minutes and you still need to have breakfast and get dressed).
Mornings in this household are great!
To keep happiness, to keep positivity, to keep happy "self confidence" is hard !!!!!
From what I understand many households are similar.
To be continued.......
Kids Need Dinner.
xxx
A few discussions tonight, so if you can "keep up" congratulations.
This morning I asked Scott to have a "sleep in".
I could see that the wear and tear of school holidays AND children being home sick at the start of term 3 was taking a toll on him.
Amelia and Tom returned to school today.
Before anyone berates Scott, lets look at "our morning"...........
Wake both kids up (they are getting older and no longer wake up ultra early).
Physically get Amelia out of bed and take her to the toilet.
Emtionally support Amelia as she prepares herself for the day...
"When do I leave?"
"When do I get Home?"
"What happens today at school?".
Then we need to vomit.
Yes that is the NEW thing.
This morning as she was vomiting, (after not once over school holidays) , she finishes and says "Oh good. I will be ok today now".
Interesting.
Anxiety?
Yes. I think so.
Tom?
Needs to wake up and do a "finger prick" to check his blood glocose levels.
"My tummy hurts. I need to stay home today".
Anxiety? Yes.
He then needs to have a measured insulin dose....based on his insulin levels.
Arguments ensue....
"NO, not now"...
"In a minute."
(we have to leave for school in 10 minutes and you still need to have breakfast and get dressed).
Mornings in this household are great!
To keep happiness, to keep positivity, to keep happy "self confidence" is hard !!!!!
From what I understand many households are similar.
To be continued.......
Kids Need Dinner.
xxx
Subscribe to:
Posts (Atom)
