For the first time ever I just want a very quiet New Years Eve.
I have always enjoyed a party, a drink and a big bang to see in the New Year.
Not this year.
It is not because I am sad, I think I just want to contemplate the year our family has experienced.
I would "hand back" Amelia's A-T diagnosis in a heartbeat BUT I would never "hand back" the experiences and friendships that have grown and been created.
I am a different person now.
A person I am prouder of than my previous self.
Who knows what 2012 will bring.
It will bring challenges and new accomplishments.
A-T will unfortunately keep it's ugly downward slide.
But we will roll with the punches and try with all of our strength to appreciate and enjoy every moment we have together.
Have a joyous and safe New Years Eve everyone.
We will be having a "mock" party for Amelia and Tom at my parents house.
The children have chosen their party props and Amelia is intent on wearing her "party dress".
Thank you for sharing this amazing year with us.
We look forward to continuing, with each and every one of you, the journey next year.
An extra special thank you to Jemimah.
This year would never have happened with out you.
You are a very special person.
xxx
Amelia is a beautiful ten year old who has been diagnosed with Ataxia Telangiectasia.
