Saturday, 14 May 2011


My apologies for not posting for a few days.
Amelia has been home sick and I am exhausted at night.
It is hard work making at an amazing life for a 7 year old (and a 4 year old at the same time) !

Firstly, thank you.
Today so many people helped Vicky Adams create her sausage sizzle for Amelia's Project.
When Amelia, Uncle Stuart (my brother) and I arrived today there were people working there who did not know each other but were all having fun cooking sausages and selling them.....for us.
When we first arrived they had sold out of sausages and were madly cooking some more.
200 sausages in the first 2 hours apparently !!!
Amelia had so much fun and it was difficult to get her to leave.
Tomorrow we do it all again.

I will update all of the recent events tomorrow night.
Too tired now.
And welcome to the new "followers". People who have chosen to click "follow" on this page. I hope you enjoy reading this as much as I enjoy posting.
My daughter, Amelia, is very lucky to have hundreds of people helping her to get to Disneyland.
Brashat, the foundation trying to find a cure for her is lucky to have you all interested in her disease Ataxia Telangiectasia.
It is very overwhelming to visually see so many people helping your family but also very humbling.

More in the coming days on my recent media interview, my visit to an amazing special school, a memorable visit with Roxy (an A-T sufferer who is now 22) and Tom's first visit to an AFL game.


Tuesday, 10 May 2011

Brain Overload

Ok. It is official.
I have brain overload.

At the moment I visualise myself walking down the street with words and sentences FALLING OUT of my ears !!!!! lol.

But seriously, I am having so much trouble remembering anything and everything.

If you want me to do something or be somewhere. Write it down.
There are so many things I have been told in the last 2 months that I know I have forgotten.

People are starting to ask me about "whether I did that - thing".
I cannot make up an excuse. That is not me.
So..... I am just saying "I am sorry I forgot / haven't had time".
Both are true.
So if I am meant to be somewhere, do something, make something, ask something, write something or ring something.......WRITE IT DOWN.
At least until I get used to everything......


P.S Had a tour of a special school today...........
P.P.S Trying to work out what is going on with Amelia's thinking ..........
All Another time xxx

Sunday, 8 May 2011

Mothers Day

Today is no different to any other.
It is Mothers Day but we are Mothers every day.

I do not think any of us are materialistic enough to believe that we need presents and cards to be told how much we are appreciated.

Everyday I am proud to be the mother of 2 beautiful children.
They can "do my head in" and I do have bad mood days like everyone else, but at the end of the day we love our kids........unconditionally.

At 36 years of age, I am confident enough to appreciate every moment I have with my children.

Think about life before children.
It is like we have been granted entry to a "secret garden" of love and experience that only people with children could possibly understand.
Amelia was a surprise for us.
We were forced into this garden.
But I would have it no other way.
Amelia and Tom are a major part of our lives.

I have my soulmate in Scott (21 years) and two children that I carried inside of me, delivered and breastfed. I have left them for their first sleepeovers with grandparents, socialised them with other children and taught them manners.

Everyday is Mothers Day for me and I am confident enough that I do not need just one day to justify my accomplishments.

I am the mother of Amelia and Tom and I am proud of my achievements.
Scott and I will be together forever no matter what happens.