My apologies for not posting for a few days.
Amelia has been home sick and I am exhausted at night.
It is hard work making at an amazing life for a 7 year old (and a 4 year old at the same time) !
Firstly, thank you.
Today so many people helped Vicky Adams create her sausage sizzle for Amelia's Project.
When Amelia, Uncle Stuart (my brother) and I arrived today there were people working there who did not know each other but were all having fun cooking sausages and selling them.....for us.
When we first arrived they had sold out of sausages and were madly cooking some more.
200 sausages in the first 2 hours apparently !!!
Amelia had so much fun and it was difficult to get her to leave.
Tomorrow we do it all again.
I will update all of the recent events tomorrow night.
Too tired now.
And welcome to the new "followers". People who have chosen to click "follow" on this page. I hope you enjoy reading this as much as I enjoy posting.
My daughter, Amelia, is very lucky to have hundreds of people helping her to get to Disneyland.
Brashat, the foundation trying to find a cure for her is lucky to have you all interested in her disease Ataxia Telangiectasia.
It is very overwhelming to visually see so many people helping your family but also very humbling.
More in the coming days on my recent media interview, my visit to an amazing special school, a memorable visit with Roxy (an A-T sufferer who is now 22) and Tom's first visit to an AFL game.