Hard to believe that was Amelia now.
So much has changed in the last 2 1/2 years.
She can no longer walk, let alone run.
Makes me scared about what the next 2 1/2 years will bring.
I am too petrified to think about 10 years.
Sometimes the weight on my shoulders is too difficult to try and process.
We try so very hard to do our "very best", but there is always going to be the prognosis for the future.
She will slowly disappear in front of us.
In 10 years there is a BIG possibility that she will no longer be with us.
Our life.......her life has turned out to be incredibly unfair.
Sometimes "coping" does not seem enough.