Monday, 23 May 2011

Lets start at the very beginning....A very good place to start (sound of music !!)

So much has happened in the last few months in our family.
After downloading lots of photo's I thought I may start "recording" it all........

In December 2010, Amelia was admitted to The Royal Children's Hospital in Melbourne because we were concerned with her overall decline. She supposedly had Cerebral Palsy and CP does not get worse.
What was meant to be an overnight visit became a four night stay.

The school sent us off with some beautiful gifts.....

This card was from Amelia's Grade 1 class.

This HUGE teddy came from Jay, the maintenance officer at school.

They did lots of tests and sent many departments in to give their opinion.
We made a wonderful friend, ate lots of Macca's and hated showering there.
As the week passed, we all got sadder and scared. Scott and I because of the information we were receiving, Amelia because she wanted no more needles.

I joked that this was Amelia's first experience with "recreational drugs"........ waking up out of sedation to 2 clowns dancing around her room !!!!

On December 10th 2010 we were told it was highly likely Amelia had Ataxia Telangiectasia (this was then confirmed on January 6th).

When we arrived home from hospital we were devastated.
Many presents, cards and Facebook messages came over the following days.

One was this card (2 metres long!) from Amelia's school.

It did not take long for me to realise that crying and being depressed was not going to help anyone.
This "angel" of a daughter deserved the best possible life I could give her.
If you are handed the responsibilty of someones life .....then you make it amazing.
You saviour every day and have NO REGRETS at the end.
So Amelia's Project went into overdrive.
Amelia's Angels began researching and we began the journey of hope.
Along the way we also realised the generosity of friends and strangers.
Personally I began on a road of self discovery and learning about what was really important in life.
I know that I have been handed this extrordinary little girl with a heart of gold and my full time job is to create memories for my 2 children.
Recently a lot of you have been telling me about how our situation has changed your own perception of life.

A loan wheelchair arrived for the Summer Holidays (thanks SCOPE)

Then the AMAZING experiences began...........

Build a bear
(thanks Mara xxx)

Hairspray the musical
(thanks Michelle, Shannan and Helena xxx)

Where we recently received a letter from Jaz (above in red) who played Tracey.

Then the publicity of Ataxia Telangiectasia and Amelia's Project began.
First was The Herald-Sun here in Melbourne.

Amelia became a model for the photo shoot !!

And to finish off tonights recorded experiences.............

A Harley Davidson Ride
(Thanks Donna, Shane, Morgan and Georgia Davies xxx)

There will be more tomorrow night !!!

No comments:

Post a Comment