Woke up this morning after a weekend of cleansing and it was time to be pro-active again.
Have decided that Amelia is not doing very well.
I am worried that she is getting worse again.
Speech and motor skills are definately deteriorating.
And unfortunately we are seeing Telangiectasia's in Amelia's eyes for the first time.
This may be all part of the A-T journey, but as parents we still need to try and delay anymore onset of the disease.......NOW.
So my motto today has been "new game plan".
This week I will be making "a plan of attack" for each week.......every week.
We need to do more, as well as live each and every day to the best we can.