This afternoon I asked Amelia a question that I regularly ask.......
"How are you ?"
Immediately the answer shocked me.
I did not realise how much I do not hear it.
She said "good".
Recently the answer has been sad.
Complaining, depressed and generally "not good".
This whole week she has been smiling, laughing and saying insanely clever "one liners".
We are all loving it, even people that do not see her regularly are noticing the difference.
From the minute she arose this morning she did not want to go to mainstream school (her 1 day !).
But she has had a happy day and may even attempt the two days she is meant to attend next week.
YESTERDAY - Had a meeting with Amelia's OT. We discussed all of the equipment Amelia needs right now and what she will need in the near future.
Things like shower chairs, a hoist to get into the bath, computer software, communication devices, cutlery, motorised wheelchair (and then car conversion), handles on toilets, ramps and handrails etc etc etc.
Amelia and I also drove to a "showroom" in Mornington.
I received a quote for $2400.
This was for everything that I saw that we needed right now.
I never knew any of these products existed.
Overall VERY OVERWHELMING.
So I had a 3 drinks last night and fell asleep at 7:20pm.
Woke up at 6:30am this morning.
I think that I totally blacked out and shut down.
We will be attending an appointment soon to look at motorised wheelchairs.
The irony ????
Amelia LOVES the special school.
LOVES the bus that comes and picks her up.
LOVES that she needs a motorised wheelchair.
She is genuinely excited about it all.
Me?
I am torn.
Sad that she needs all of these things
BUT
so, so, so happy because I have not seen her this happy in a while.
There is so much more to talk about like NEW RESEARCH and TRIALS and TOM but I am too tired right now.
So I will leave you with something Amelia said yesterday.
We had just got home from taking Tom to basketball training.
"While I get tea ready, what would you like to do or play?" I asked.
She said in a theatrical voice
"Take me to your leader".
"What?" I asked laughing.
"The Computer.......I want to play games".
Maybe it was a "had to be there" but I found it very witty.
Will speak soon.
Amanda
xxx
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