A letter to my daughter........
To My Dearest Amelia,
I love you so much it hurts.
I will always love you.
Every single person in this world has been given a life.
Rich or poor, happy or sad, long or short.
People are born with different coloured hair, eyes and skin.
Their country, their family members and society contribute to the person they become.
From the moment you turned 4 months of age you were special.
You were happy, affectionate and social.
You made people smile.
As you grew older things started happening to your body.
It was more difficult to do things and self manage daily tasks.
I cannot comprehend what it is like to lose brain cells and struggle with something that you could do a day earlier.
I could continue writing about all of the sad things in your life but I would like to attempt not looking at them like they are sad.
Amelia you have Ataxia Telangiectasia.
It is what it is and you are still going to have an amazing life despite all of your limitations.
You have attributes that no one else will ever have.
You have an invisible glow around you now that people are drawn to.
Your smile and laugh , recently, is making a whole room stop still.
It is contagious to laugh with you.
You have adjusted so well to asking mum and dad to help you do everything
(and your manners are always immpecable!).
You have learnt that it is ok to get angry and speak your mind.
You have begun searching for things you "can" do rather than constantly observe what you can't.
You have learnt to follow your "gut" in making decisions and understand now that you can.
I now see a resilience around you that does not allow any sadness or pity to get near you.
You are at peace.
You are at peace with your body and your mind.
You represent the person that I would love to be.
There may be no marriage, children or mortgage...... but there will also be no hurt and heartache.
We are able to protect you from that.
Daddy and I are your safe haven.
All fears, worries and concerns can be alleviated by us.
We will carry those feelings for you.
We are now carrying those feelings for you.
You do not need to experience the bad to enjoy the good.
You experience it everyday and yet choose to see the happiness through it.
Daddy, Tom and I still have to be ourselves.
We will display anxiety, anger and sadness......and that is ok.
We are all individuals with our own individual life.
We are all learning everyday how to smile and laugh through being around you.
Tom has leant that "helping and encouraging" are natural behaviours in this house.
So is speaking your mind and creating your own happiness.
Coping mechanisms are available for any situation.
You seem to have found yours.
Your happiness now radiates off you.
It has made us all realise how minimal our own worries are.
You are creating a legacy Amelia.
You are touching the hearts of many.
Your amazing life has only just begun and I will move mountains to make sure that continues.
Thank you for coming into my life and showing me what is important (even though I stumble and forget sometimes).
I love you Amelia Grace Nicholds and always will.
Love always and forever